myPHR twitter feed FAQs About Us Contact Us



Seniors blog

Caregiving at an Early Age
Monday, December 01, 2014 | Vera Rulon

When we talk about caregiving we usually think of adults taking care of their elderly parents, their children, or their partners. But what if the caregiver is a child or a young adult?

According to a 2005 report by the National Alliance for Caregiving, there were 1.3 to 1.4 million caregivers between the ages of 8 and 18 in the US. These children are typically caring for a parent or grandparent and may help with dressing or feeding, bathing or using the bathroom, paying bills, and many other tasks. Young caregivers can undergo emotional toll and physical exhaustion. Unfortunately, their emotional, social and health needs are too often overlooked.

Young caregivers may not be getting the support they need, mostly because people may not know that they are taking care of someone. These young people need to know that it is OK to let the adults in their school or community know that they are a caregiver. And schools and communities should be aware of a child’s or young adult’s personal status as a caregiver.

Young caregivers are not an American phenomenon, but global. Caring for others can be very stressful. In Western Kenya, young caregivers cope with their situations by seeking social support, finding jobs, and creating a positive identity as a caregiver. In other parts of the world, such as in Australia, young caregivers are joining online communities. Their personal and social needs are being met by simply being able to share similar situations with others like them.

Areas in which young caregivers may need support include:

  • Social – feeling isolated due to lack of time or energy for friendships
  • Academic – falling asleep at school, or not completing homework assignments
  • Psychological – suffering from anxiety, depression, or behavioral problems
  • Financial – dealing with the stress of financial constraints or having to financially support the care receiver or family
  • Self-care – neglecting personal needs such as eating properly, getting adequate sleep, and receiving emotional support

Young adult caregivers (ages 18 to 25) may need support in these areas as well, but as legal adults, they have additional responsibilities that may call for support, including help obtaining medical care and making end-of-life decisions. According to a study there are an estimated 3.5 to 5.5 million young adult caregivers in the US and maybe more as this study was conducted over 10 years ago. It is important to raise awareness about this age group, as well.

Ways to Help
Schools need to be aware if a student is taking care of someone, as it can impact their academic work, behavior and school relationships. If you are a teacher or administrator, or work in other roles in a school, be cognizant of changes in behavior or if academics seem to be faltering when normally a student does well. Ask questions to find out whether there is a sickness in the family that the student wants to talk about.

Schools and other organizations that interact with children and young adults, such as churches and community centers, may wish to establish support communities or connect students to local and/or online resources. Organizations that provide resources for the young caregiver include:

Vera Rulon is Director of strategic communications within Pfizer Medical.

 This blog post was originally posted on Sponsored by Pfizer

Tags   caregivers

About This Blog

Welcome to the Caregiver’s PHR blog – your connection to health information management professionals and other caregivers managing the healthcare of a loved one. Caregivers can be more prepared for the unpredictable simply by keeping a record of their loved one’s personal health information to present to a healthcare provider when needed. As a caregiver, you can often become overwhelmed with the emotional and physical responsibilities involved in this commitment. Just tracking medications and doctors’ visits can seem nearly impossible at times. A personal health record can help ease your mind. We hope you will visit this blog often to interact with experts in the field to seek advice and tips for best practices in creating and maintaining your loved one’s personal health record and the most effective ways to use that information to play a more active role in their healthcare and simplify your life.

Blog Contributors

Marsha Dolan, Valerie Watzlaf, Cindy Boester, Heidi Shaffer, Julie Wolter, Margaret Hennings, Colleen Goethals, Vera Rulon, Leah Grebner, Robert Caban, Mynilma Olivera-Vazquez, Amanda Bushey, Margie Kelly, Donna DuLong, Sarah Dietze, Valisha McFarlane, Maria Kovell, Ted Eytan, Leann Reynolds, Laura Heuer, Kristin Stewart, Derek Allen, Chris Matthies, Margo Corbett, Craig Newmark, Sarah Buelterman, Skyler Tanner, Aniruddha Malpani, Joan Malling, Marilyn McFarlane, Megan Rooney, Patrick Rhone, Dr. Carrie Nelson, Maria Bouselli, Erin Jordan


PHRs do more than manage medication. Stay up to date with information that can help you communicate with your doctor and stay out of the hospital.

RSS Feed Icon RSS

See all RSS Feeds